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The area of using online tools to better share stories is exploding. With consumers/employees increasingly responsible for their own health care costs, it's become a need; not just a nice-to-have element. In fact, Fairview is treading into that space as we speak. Also, check out www.healthcarescoop.com (put up by Blue Cross, but sponsored by Mayo Clinic and Fairview, among others).
Health care definitely could benefit from the proper use of communication and collaboration technologies and communities.
Since health care represents a wide range of services and needs, the pliancy of various social media lends itself to enhancing the quality of patient-provider relationships, collaboration among healthcare professionals and enabling the availability of authoritative, validated and meaningful online content.
We need to flush out all of the opportunities and dangers of social media in provision of safe and effective health care. Our helathcare system is fast appoaching a catastophic collapse. We need more doctors and nurses and administrators and others involved in getting up to speed with an understanding of how the Web works, and how it doesn't.
Quality of care not only involves direct patient-provider contact: it involves remarkable communication among all parties involved. Services like Twitter (or more secure analogues) could certainly provide better follow-up care for patients who have established relationships with providers and could radicalize the way professionals accomplish their goals.
HIPAA will need to be reformed. We will need to re-visit the issue of privacy in a world where technologies are making it harder every day to maintain privacy.
We have a long way to go before social media can be used in the ways that it aught to be used, but my I think as awareness grows of the technologies and communities that are sprouting, healthcare will take a needed look at social media.
Above all, efforts to incorporate social media into health care must focus on the safe and effective uses of the various technologies, without being fearful of change.
Glad to see interesting in health care communication and collaboration technologies waxing. It's time.
@Phil. These are some great points you make. Much like any industry, the health care one is far behind the times in more ways than just physical funding and resources. Many countries are near collapse, like you say. The sooner newer approaches and methods are used, and relevant training and support given, the better for all concerned.
And while sharing stories is a great source of support, What if patients shared data directly with each other? CureTogether and PatientsLikeMe are early experiments.
Social media definitely can save lives - thanks for posting this inspiring perspective.
Alexandra Carmichael
Co-Founder, CureTogether.org
I would love to see marketing and customer service basics required for health care professionals while they're still in school. I see that happening a bit more. I work in the dental field and many of our younger dentists are the ones who best understand the value of communication tools, including social media.
Change in health care is most often a slow road. More support from medical schools and associations could help speed efforts.
Terrific ideas.
As you know, I'm generally a fan of "wisdom of crowds" and social media based approaches to addressing challenges facing health care. While I'm skeptical about pure patient-driven "patient heal thyself" approaches that some advocate, your ideas for using social media as a new online clinic for health care strike the right balance between empowering patients and providing effective community moderation by licensed clinicians. I see challenges being raised immediately by providers and payers around the usual compliance, billing (what's the billing code for a Skype video consult about your pinkie? charge more for HD than SD video? extra if images are saved with comments to your PHR?) and privacy issues.
I agree with Phil that we need to do a much better job of explaining where HIPAA is and isn't relevant to deploying social media in health care. HIPAA myths that block effective care and patient empowerment need to be busted. Patient and medical record privacy also needs to be preserved, especially given the financial incentives for rapid adoption of EHR by physicians and providers. If we could get a clear handle on where HIPAA applies to social media scenarios (and doesn't), the billing and compliance issues could be addressed by experts.
What could be done today? Basic uses of social media could address patient education, improve outcomes and support patient satisfaction objectives with minimal provider resource investment or the need to address HIPAA, billing or compliance issues.
- Tracking medication compliance through social media coupled with patient education has the potential to save lives, deliver billions of dollars in cost savings and reduce stress on emergency departments. One large retail pharmacy is already committed to providing a medication adherence service that patients could access through social media.
-The other short-term opportunity is service recovery (known as customer service in most other segments outside health care.) Getting real time feedback from patients and addressing their (often non-clinical) service concerns quickly would convince many patients that health care organizations are listening. E.g., Palo Alto Medical Foundation (@PAMF) is making it easy for patients to see wait times for urgent care service clinics using online social media. If one person, like @comcastcares on Twitter, can convince customers that a cable tv operator is listening and addressing their concerns, imagine what could be accomplished for health care service recovery using online social media.
Phil--I agree with your point about privacy. We need to take a long, hard look at our privacy laws and how the impact the way we care for our patients in this new Web 2.0 world. Many of these laws and policies were put in place years ago and need to be reviewed with a lens for the current state of business.
Alexandra--Great ideas, thanks for sharing. I especially like the ideas around patients sharing data directly. I plan on looking into both of those example more in-depth.
Candee--Interesting perspective about integrating marketing/PR into the cirriculum for physicians/dentists. We both know the younger professionals are using and embracing these tools--we just need to bring along the Gen Xers and boomers now.
Tom--Completely agree with your take that customer service is a huge opportunity. We have a tremendous opportunity in the next few years to use these tools to educate our patients about the health care system and to deliver basic care. I think patients are ready for this, too. Just look at Frank and Comcast--people will find and utilize the new channels, just give them a chance.
Great post. It got me thinking about University of Chicago Medical Center's recent decision to do pre-care triage in their ED to refer people to less expensive community hospitals for ER services. The Chicago Tribune article reported that U. of C. found 40% of all ED patients did not need their services and could receive the care they needed - for less money - closer to home. That, in itself, is a pretty bold move, but what if they took it further - like you suggested - and leveraged social media tools to do the pre-care triage at home before patients even arrived on scene? They could do an initial assesment and diagnosis, share that information with the hospital they refer the patients to, thereby saving (1) patients an unnecessary drive to U. of C. and (2) the community hospital some time/work at intake.
Thanks for keeping the fires of social media innovation & healthcare burning!
- Katie Adams (@katieisawriter)
I just spent the weekend in Haleyville, AL, the location of the first 911 emergency call and that technology has saved millions of lives. So I am not so quick to say social media is “All That” regarding life saving milestones.
It is however, undisputed, that social media allows for rich information sharing. When that happens, people become smarter, more confident, more comfortable and can make better decisions about their healthcare. Will those characteristics save lives? sure. Social media enables people to overcome time and geography. But clearly there were plenty of cancer support groups long before social media. I caution those that think a Second Life is a replacement for a doctor's office. In the case of the routine lab report result, to me email or a web portal will do just fine,
Second Life, graphics and 3D worlds are overkill. In the case of disclosing when a patient has a life threatening sickness, nothing beats in-person, or in the situation of a combined team of specialists around the world, I like the video option with someone that is trusted and caring with the patient. Sure I advocate social media in applications that are appropriate, but I also would ask why a few times before making the statement that social media is a must for healthcare.